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  • Measure Summary
  • NQMC:011278
  • Dec 2013

Cancer patient experience: percentage of patients who reported whether they have been enabled by healthcare professionals to share decisions about their care and treatment on the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool.

NHS Scotland, Scottish Cancer Taskforce, National Cancer Quality Steering Group. Cancer patient experience quality performance indicators. Edinburgh (Scotland): Healthcare Improvement Scotland; 2013 Dec. 33 p.

View the original measure documentation External Web Site Policy

This is the current release of the measure.

Primary Measure Domain

Clinical Quality Measures: Patient Experience

Secondary Measure Domain

Does not apply to this measure

Description

This measure is used to assess the percentage of patients who reported whether ("Strongly Agree," "Agree," "Disagree," "Strongly Disagree") they have been enabled by healthcare professionals to share decisions about their care and treatment on the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool.

Cancer services can demonstrate through the application of the QPI measurement tools that their patients have been enabled by health care professionals to share decisions about their care and treatment as follows:

The patient(s):

  • Has been included in discussions about their treatment and care.
  • Has been given enough information to help them make an informed choice.
  • Views were taken into account by the health care professional.
  • Had enough time to make a decision.
  • Was/were involved in decisions as much as they wanted to be.
  • Was/were told about the possible side effects and how to manage them.
  • Felt the health care professional they saw knew enough information about their care to provide good clinical care.
  • Felt their personal circumstances were taken into consideration.

The health care professional(s):

  • Have explained the risks and benefits of treatment in a way that the patient understands.
  • Have provided appropriate information or signposting to inform/assist the patient.

Note from the National Quality Measures Clearinghouse: This measure is part of the QPIs collection. For more information, including a complete list of QPI measure sets, please visit the Healthcare Improvement Scotland Web site External Web Site Policy.

Rationale

Both the patient and the healthcare professional(s) have responsibility in ensuring that decisions regarding care and management of a patient have been reached mutually.

"The healthcare professional should clarify with the patient at the outset whether and how they would like their partner, family members and/or carers to be involved in key decisions about the management of their condition" (National Institute for Health and Care Excellence [NICE], 2011).

"Patients should be given information about relevant and available treatment options, even if these are not provided locally" (NICE, 2011) and "provided with clear information relating to the potential risks and benefits of treatment" (Scottish Intercollegiate Guidelines Network [SIGN], 2006).

"Healthcare professionals should be aware of the value and availability of patient decision-making aids. If suitable high quality decision-making aids are available, most appropriate one should be offered to the patient" (NICE, 2011).

"A pathway of care should be agreed, and shared with the patient and any family members or carers, as well as the patient's general practitioner (GP) (SIGN, 2006), even if the patient's decision is not to have a treatment, or if the patient holds different views from the healthcare professional regarding the risk/benefit balance of any treatment" (NICE, 2011).

Evidence for Rationale

National Institute for Health and Care Excellence (NICE). Patient experience in adult NHS services: improving the experience of care for people using adult NHS services, draft quality standard. London (UK): National Institute for Health and Care Excellence (NICE); 2011 Jun. 25 p.

NHS Scotland, Scottish Cancer Taskforce, National Cancer Quality Steering Group. Cancer patient experience quality performance indicators. Edinburgh (Scotland): Healthcare Improvement Scotland; 2013 Dec. 33 p.

Scottish Intercollegiate Guidelines Network (SIGN). Diagnosis and management of head and neck cancer. A national clinical guideline. Edinburgh (Scotland): Scottish Intercollegiate Guidelines Network (SIGN); 2006 Oct. 90 p. (SIGN publication; no. 90).  [511 references]

Primary Health Components

Cancer; patient experience; shared decision making

Denominator Description

Cancer patients who responded to the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool

Numerator Description

Number of patients who reported whether ("Strongly Agree," "Agree," "Disagree," "Strongly Disagree") they were enabled by healthcare professionals to share decisions about their care and treatment on the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool

Type of Evidence Supporting the Criterion of Quality for the Measure

  • A clinical practice guideline or other peer-reviewed synthesis of the clinical research evidence
  • A formal consensus procedure, involving experts in relevant clinical, methodological, public health and organizational sciences

Additional Information Supporting Need for the Measure

Unspecified

Extent of Measure Testing

The collection of data is piloted on a small number of patient records using a paper data collection form produced by the Information Services Division (ISD). The aim is to identify any anomalies or difficulties with data collection prior to full implementation. At least one NHS board in each Regional Cancer Network participates in the pilot.

Evidence for Extent of Measure Testing

NHS Scotland. National cancer quality performance indicators: overview of development process. Edinburgh (Scotland): NHS Scotland; 2012 Dec. 7 p.

State of Use

Current routine use

Current Use

Internal quality improvement

National reporting

Public reporting

Measurement Setting

Ambulatory/Office-based Care

Ambulatory Procedure/Imaging Center

Hospital Inpatient

Hospital Outpatient

Professionals Involved in Delivery of Health Services

Advanced Practice Nurses

Nurses

Physician Assistants

Physicians

Least Aggregated Level of Services Delivery Addressed

Single Health Care Delivery or Public Health Organizations

Statement of Acceptable Minimum Sample Size

Unspecified

Target Population Age

Unspecified

Target Population Gender

Either male or female

National Quality Strategy Aim

Better Care

National Quality Strategy Priority

Person- and Family-centered Care

IOM Care Need

Living with Illness

IOM Domain

Patient-centeredness

Case Finding Period

Unspecified

Denominator Sampling Frame

Patients associated with provider

Denominator (Index) Event or Characteristic

Clinical Condition

Denominator Time Window

Does not apply to this measure

Denominator Inclusions/Exclusions

Inclusions
Cancer patients who responded to the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool

Exclusions
Unspecified

Exclusions/Exceptions

Does not apply to this measure

Numerator Inclusions/Exclusions

Inclusions
Number of patients who reported whether ("Strongly Agree," "Agree," "Disagree," "Strongly Disagree") they were enabled by healthcare professionals to share decisions about their care and treatment on the Cancer Quality Performance Indicator (QPI) Shared Decision Making Measurement Tool

Exclusions
Unspecified

Numerator Search Strategy

Fixed time period or point in time

Data Source

Patient/Individual survey

Type of Health State

Does not apply to this measure

Instruments Used and/or Associated with the Measure

QPI 3 – Shared Decision Making Measurement Tool

Measure Specifies Disaggregation

Does not apply to this measure

Scoring

Rate/Proportion

Interpretation of Score

Desired value is a higher score

Allowance for Patient or Population Factors

Unspecified

Standard of Comparison

External comparison at a point in, or interval of, time

External comparison of time trends

Internal time comparison

Original Title

QPI 3 – shared decision making.

Measure Collection Name

Cancer Quality Performance Indicators (QPIs)

Measure Set Name

Cancer Patient Experience

Submitter

NHS Scotland - National Government Agency [Non-U.S.]

Scottish Cancer Taskforce - National Government Agency [Non-U.S.]

Developer

NHS Scotland - National Government Agency [Non-U.S.]

Scottish Cancer Taskforce - National Government Agency [Non-U.S.]

Funding Source(s)

Scottish Government

Composition of the Group that Developed the Measure

Cancer Patient Experience QPI Development Group

Financial Disclosures/Other Potential Conflicts of Interest

Unspecified

Adaptation

This measure was not adapted from another source.

Date of Most Current Version in NQMC

2013 Dec

Measure Maintenance

The Cancer Quality Performance Indicators (QPIs) will be kept under regular review and be responsive to changes in clinical practice and emerging evidence.

Date of Next Anticipated Revision

Unspecified

Measure Status

This is the current release of the measure.

Source(s)

NHS Scotland, Scottish Cancer Taskforce, National Cancer Quality Steering Group. Cancer patient experience quality performance indicators. Edinburgh (Scotland): Healthcare Improvement Scotland; 2013 Dec. 33 p.

Measure Availability

Source document available from the Healthcare Improvement Scotland Web site External Web Site Policy.

For more information, contact the Healthcare Improvement Scotland at Gyle Square, 1 South Gyle Crescent, Edinburgh, Scotland EH12 9EB; Phone: 0131 623 4300; E-mail: comments.his@nhs.net; Web site: www.healthcareimprovementscotland.org/ External Web Site Policy.

Companion Documents

The following is available:

  • NHS Scotland. National cancer quality performance indicators: overview of development process. Edinburgh (Scotland): NHS Scotland; 2012 Dec. 7 p. This document is available from the Healthcare Improvement Scotland Web site External Web Site Policy.

NQMC Status

This NQMC summary was completed by ECRI Institute on May 18, 2017.

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